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Category: Meet the Family

Don’t Talk-a-Thon | Get Involved | Meet the Family | Press | Research Matters | Research News

NextGen ALS: A Weber Family Initiative 

In 2020, Cathy and Richard called Project ALS after hearing about the development of a novel antisense oligonucleotide (ASO) therapy for people living with FUS ALS. So was born NextGen ALS, a Weber family initiative in collaboration with Project ALS that is committed to raising funds for targeted research toward treatments and cures for genetic forms of ALS.

Valerie the Disruptor

The McDaniel Family

"I was diagnosed with ALS in February 2020 after a frustrating year of searching for answers & even longer of progressing symptoms..."

The Weber Family

“Our connections to ALS run deep & very personal. Our dad passed away from ALS and, of his nine children, five have been diagnosed..."

Janet and Eileen

"My sister, Janet, was diagnosed with ALS about a year and a half ago. I was stunned..."

Team McLaren

“In 2010, our dear friend Eric McLaren was diagnosed with ALS..."

The McGrath Family

“My husband, Mickey, was diagnosed with ALS in 2001 at the age of 49..."

The Vierstra Family

“Our family has a deep and multi-generational connection to ALS. Our mother succumbed to ALS in 1987. She was almost 33..."

She Has Hope

Only Seventeen

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