making her dream a reality

25 years ago, a 35-year-old woman facing an ALS diagnosis decided to change the way ALS research worked by creating Project ALS. Though Jenifer knew the answers wouldn’t be there in time for her, she fought for those future 35-year-olds facing what she did in 1998.

you can Move jenifer's dream forward by donating today

88% of every dollar goes directly towards our cutting-edge ALS research programs. With your donation, we will be able to find the first effective treatments and a cure.

Join the fight against ALS

Every 90 minutes

Someone dies from and someone is diagnosed with ALS.

2-5 years

is the life expectancy of ALS after diagnosis.

70% increase

of ALS cases worldwide by 2040 if we don't intervene now.

ALS-free Future

is possible if we work together and refuse to let ALS win. Join the fight.

Two lives gone far too soon. Twin sisters Jaci and Alex lost their lives to ALS before the age of 26.

ALS Does not discriminate

Money Raised

$ 0

Researchers Recruited

Drugs In Clinical Trial

Project ALS is a women-founded and women-run nonprofit rooted in family and love

“You care about us as people. And I think that for any company, entity, whoever, if you’re going to find drugs that work and eventually find cures, you need to care about the people, first and foremost.”

“Project ALS was the first to say, we’re going to pay for things, to gamble, and it might fail, but that’s okay, we have to jump start the process.”

“Through Project ALS, both of our girls participated in research and the early development of a new drug to treat FUS-ALS. With Project ALS, their heroic efforts have made it possible for others with FUS-ALS to receive the gift of medicine.”

25 Years of Research Progress

From creating ALS in a dish to pushing two drugs into clinical trial, the past 25 years has seen immense progress. Take a deeper look into what we’ve been up to.